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| Ryan's Song |
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I spent Wednesday morning at Ryan’s (my son) school. It was chapel day. Parents are invited. One grade puts on chapel for the whole school. This time is was the third grade’s opportunity, so I went to watch and be a part of it. The school is a small Christian academy tucked away in southern Maryland. It has a total of about 300 kids from K through 12 (and growing each year). They teach “Christ crucified” as the foundation for everything. I like that. I arrive a little early. Chapel starts at 9:00. On this day, my son is playing the piano. It is his first time ever playing the piano in front of a group of people. He plays our keyboard at home and the piano where his music lessons are, but I have never seen him perform in front of a group. I want to be there to encourage him. He is what is considered a highly functioning autistic child. Piano is one of the things he gets naturally and enjoys doing. I walk into the gym and walk to the top of the bleachers where I can lean against the wall. Some of the kids are running around getting things set up. They look like high school kids. The third grade, where my son is, sits in chairs quietly as their teacher goes through what will happen. My son sees me and waves. I smile back. He has to sit on his hands otherwise he will touch other things. He puts his hands back under his legs quickly. He is a good kid. The Praise and Worship team, a combination of about 20 high school kids all get into position and start testing mics and tuning instruments. One by one the classes start coming in and take their seats in the bleachers. There are some parents here. Not a lot, but some are here with me. Chapel isn’t for the parents. It is for the kids and it is run by the kids. It is time to start. One of the third graders comes out and asks us all to stand. We say pledges to the Christian flag and the Star Spangled Banner, then we sing the national anthem. One of the kids leads us in prayer. Then one of the third graders gets up and walks over to the piano. She plays a song, then walks back followed by another. Several follow one at a time, play their song, followed by another. Some are advanced, some are beginners. Each plays with their whole heart giving God glory in what they are doing. Then it is Ryan’s turn. Just as he sits down, he scans the crowd and our eyes lock. I smile. I am not sure if he is nervous or not. Then he plays and for two minutes I hear nothing but joy coming from the piano. Ryan is still a beginner, but a symphony was played. When he was done, he looked up at me and smiled. I raised my hand with a big “thumb’s up”. He returned to his seat followed by another third grader. After the piano playing is complete, the Praise and Worship team stepped in and led us in several songs. My mind drifted back to when we found out we were going to have a third child. My wife, Ann, and I had wanted a big family. We already had a boy and a girl. We were so excited to find out that we were going to be blessed with another little one. Although our heart was for a big family, we got started pretty late, and because of her age, Ann qualified for special care through the pregnancy. We kind of liked that because we got ultrasound pictures every month and knew by the end of the first trimester that we would have another little boy. We named him Ryan which means king. He would be our little king. In about the fourth month the problems started. In one of the ultrasounds they found what looked like a lump forming under his chin. They referred us to University of Maryland Medical Center. They did more tests, more ultrasounds, more scans. By the time they were done with the tests the growth had grown so large that Ryan’s head was pushed upwards and pressing hard against his back. They were certain there was no way he could be born normally this way and they were concerned that he may be terribly deformed. They set up counseling sessions to discuss our options. I guess we were pretty naïve because they all came at us with advice to abort the baby. The nurses, the doctors, the counselors all advised us to abort. Fortunately my wife and I were in agreement on the issue, but it still hit us hard. Here we were bringing a little one into the world and all the people who were suppose to help us were telling us to kill the baby. When we told them with scripture how that wasn’t even an option, they told us that our “crutch religion” wasn’t going to help the baby. It might help us get through this, but we should consider the baby’s life afterwards. We were, but they weren’t, and they didn’t see it. After two weeks of meetings, counseling sessions, and discussions, they decided there was nothing more they could do for us and referred us to Johns Hopkins. At Johns Hopkins they have a special team that deals with difficult deliveries. It was a good move all around because we had lost confidence in the University of Maryland’s ability to help us. Since we weren’t going to “do anything” except bring this baby into the world, Johns Hopkins didn’t need to see Ann until about five weeks before the due date. We notified all the different prayer chains we knew and went in front of the church to ask for prayer as well. When that date came, Ann made the trip to Baltimore to meet the doctors, discuss what they would be doing, and get an update on how the baby was proceeding. The first thing they did was take more ultrasound pictures to see how little Ryan was doing and to get a read on the growth. I am sure many of you ladies know the drill. Fill the bladder, then lie down on a cold table and let someone push down on your stomach. Certainly isn’t one of the most pleasant experiences, but worth it to see your baby. They are very thorough at Johns Hopkins. The technician spent about 30 minutes getting everything set up, then another 30 minutes taking lots of pictures. We could see all the pictures from the University of Maryland hanging on the wall. The technician would get up, measure things from those pictures, then return to scan Ryan some more. Then the technician told us to wait while he went and got his boss to come and check out what he had done. She came in and spent another 30 minutes looking over Ryan. Next they both left and brought the doctor in. This lady was one of the most professional doctors we have ever met. She immediately made you feel at ease and immediately got down to business. She asked lots of questions, took lots of notes, and took a bunch more pictures of Ryan. She told Ann that she knew she was probably uncomfortable, but wanted her to stay on the table for a few more minutes. Then they all left Ann and I there alone for a while. We talked about how much we thought these folks were real professionals and dedicated to making sure our little boy had every chance to live a healthy life. When the doctor came back in the room, she explained to us what was going on. All three of them, the technician, his boss, and her, could not find anything wrong with Ryan. According to everything they were seeing, Ryan was a perfectly healthy little baby boy who would be making an entrance into this world in a few weeks. She told us that the University of Maryland had never made a mistake on any referral before, so she had spent some time validating that they had indeed referred the right patient. They had. Nobody could explain what happened to the lump from a medical perspective. The doctor looked at us and said, “I bet you’ve been praying haven’t you?” Ann cried. Three weeks later, Ryan made his entry into the world. It was a very normal delivery in every sense of the word, and just as she had with the other two, when they laid Ryan on Ann’s breast, she sang to him. Our little king had been born. As the chapel service proceeded, the kids put on skits. Today’s lesson was about the different names of God. Each kid would hold up a sign with a name on it and then recite a scripture verse (written on the back of the sign) that supported that name. When it was Ryan’s turn he held up a sign that read “King of kings and Lord of lords”. How appropriate, I thought, since his name means “king”. He didn’t have to read the scripture. He looked up at the audience and recited it from his heart. When the chapel service was over, the kids left to go back to their classrooms one grade at a time. I sat and watched. I thanked God that we didn’t give in to those who wanted us to abort our baby. If we had, he would have never played his song and would have never stood before us all and stated who the King of kings was. How sad it would have been if Ryan’s song had never been heard. How wonderful it is that it was. Ryan’s song. One two minute performance in an hour chapel. One little boy playing a symphony for our Lord. One small king praising the King. May it ever so be that no stone will have to cry out for him. 19:40 And he answered and said, I tell you that, if these shall hold their peace, the stones will cry out. Copyright 2007, Larry Reagan |
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| To add a comment to "Ryan's Song" |
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| March 24, 2007 |
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DC; Praise God, and Hallelujah!!!!!!! What a miracle you have been blessed with; what a glorious and awesome God to give you such a gift as this. That song that little Ryan played must have been so amazing I can just picture God watching with his eyes closed listening to each and every note of the melody and smiling, seeing His beautiful child pouring out his heart in song. I am in awe sometimes when I speak with autistic children, it seems as though they have a direct line to God; their eyes shine forth with His light; and their smiles as though they have been praising God since the moment of their existence. Wouldn't it be wonderful if we could all shine like this every day, every moment, and not be so consumed with the worries of this world. Just praising God in everything and giving thanks for each and every second. Thank you for sharing this with me, it was a joyous cry that was so needed today. Bless you. Kelly |
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| March 24, 2007 |
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| what is the school called? |
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| March 24, 2007 |
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Kelly, has anybody told you recently that you are absolutely beautiful with a heart of gold? Have they? Well, they should. JoshMo, the school is called King's Christian Academy located in Calloway, Maryland. |
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| March 25, 2007 |
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Psalm 118 comes immediately to mind: Give thanks to the Lord, for he is good! His faithful love endures forever. Let all Israel repeat: “His faithful love endures forever.” Let Aaron’s descendants, the priests, repeat: “His faithful love endures forever.” Let all who fear the Lord repeat: “His faithful love endures forever.” In my distress I prayed to the Lord,and the Lord answered me and set me free. The Lord is for me, so I will have no fear. What can mere people do to me? Yes, the Lord is for me; he will help me. I will look in triumph at those who hate me. It is better to take refuge in the Lord than to trust in people. It is better to take refuge in the Lord than to trust in princes. Though hostile nations surrounded me, I destroyed them all with the authority of the Lord. Yes, they surrounded and attacked me, but I destroyed them all with the authority of the Lord. They swarmed around me like bees; they blazed against me like a crackling fire. But I destroyed them all with the authority of the Lord. My enemies did their best to kill me, but the Lord rescued me. The Lord is my strength and my song; he has given me victory. Songs of joy and victory are sung in the camp of the godly. The strong right arm of the Lord has done glorious things! The strong right arm of the Lord is raised in triumph. The strong right arm of the Lord has done glorious things! I will not die; instead, I will live to tell what the Lord has done. The Lord has punished me severely, but he did not let me die. Open for me the gates where the righteous enter, and I will go in and thank the Lord. These gates lead to the presence of the Lord, and the godly enter there. I thank you for answering my prayer and giving me victory! The stone that the builders rejected has now become the cornerstone. This is the Lord’s doing, and it is wonderful to see. This is the day the Lord has made. We will rejoice and be glad in it. Please, Lord, please save us. Please, Lord, please give us success. Bless the one who comes in the name of the Lord. We bless you from the house of the Lord. The Lord is God, shining upon us. Take the sacrifice and bind it with cords on the altar. You are my God, and I will praise you! You are my God, and I will exalt you! Give thanks to the Lord, for he is good! His faithful love endures forever. |
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| March 25, 2007 |
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| Amen...amen! |
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| March 25, 2007 |
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This is me after reading this blog...  This is one of the best blogs I have read on this website! Wow, what a story! 1st of all in response to the first section...this is what worship is all about! I like the bumper sticker that says "Aren't you glad Mary didn't have an abortion?" We are also glad you and Ann didn't! What a testimony. Thanks Bro!
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| March 25, 2007 |
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| Sometimes I wonder about all those hurting hearts out there who did choose to have an abortion and I wonder how stories like this make them feel...alienated...alone...hurt even more...I love kids so much that it is hard for me to understand why someone would choose abortion, but I know they do. It is only because Ann and I already had determined our convictions when we weren't under pressure that we could walk them out when we were. Oh, but by the grace of God... |
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| April 27, 2007 |
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| That was just beautiful- thank you |
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| April 27, 2007 |
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| Thanks. Every day I see him grow more and more and I thank God I am his dad. |
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| May 29, 2007 |
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Thanks debk. Sorry to hear about your son. It is so sad when things like that happen.
As you probably know, based on your experience with autistic kids, Ryan is our traffic cop. He needs a set of rules and he follows them precisely - probably why he does so well in music and math. Drives the rest of the family crazy some times, though ;^) |
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| May 31, 2007 |
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| I am so glad to see this awesome blog keep coming around. (To borrow your words Voice...) If I can shamelessly say, I think the blog pluggin worked :) It seems like everytime my blog pluggin post comes back around, this one shortly follows, since I posted it as my favorite. |
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| May 31, 2007 |
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| I agree. Thanks Sue. Seems to strike home with many people. |
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| May 31, 2007 |
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| awesome voice |
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| May 31, 2007 |
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| We went through a similar experience.They thought our son would be a Downs child & we were counseled to abort.For us this was not an option & God blessed us with a perfectly healthy son.It goes to show that God is in control not the medical staff or any other human. |
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| May 31, 2007 |
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| Wow...another good example of why we should lean on His understanding and not our own... |
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| August 14, 2007 |
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| This is the most beautiful blog I've ever read... Thank you! |
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| August 14, 2007 |
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| Thanks Val. I know you have had a rough road, too. All I can say is we lean on Him for His understanding, His wisdom, His strength, and walk through life giving Him the glory...the rest is just the details... |
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| October 02, 2007 |
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voice_in_d...
You both trusted in God and not in man you stood steadfast in your faith. GLORY BE TO OUR GOD |
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| October 02, 2007 |
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| Thank you MaKelly. Appreciate your encouragement. Raising Ryan isn't always easy, but moments like this one remind us that God is good all the time. TGBTG!! |
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| October 21, 2007 |
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| Wonderful!!! |
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| October 21, 2007 |
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| Thanks GrannyB. I return to this story every now and then to remind myself of His glory. |
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| November 04, 2007 |
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This is a beautiful story, better than any fiction ... and it's true and the truth of it glorifies our God. Abortion is an important topic in our family because our oldest child is adopted .. and glad he wasn't aborted. Our 2nd child was a problem pregnancy and he's glad he wasn't aborted. God is good and he is pro-life. Thank you for sharing Ryan's story ... which is still being written. May he live under the favor of God all his life; may he continue to rule in life as a king, and may be fulfill all his Father's dreams for him. |
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| November 04, 2007 |
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| Thanks JayKTX. Amen and amen. |
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| November 04, 2007 |
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| OK Voice I'm reading this at work and I really want to tear up. My friends at church have been wondering when I would cry. Maybe when I get home this might do it. This is an awsome post God knows when you posted it but I read it while reading the other post about twins. It seems we westerners have in many ways gotten to smart to learn to ask for miracles. |
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| November 04, 2007 |
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| Dave, I totally agree with you. God has to keep our hearts soft and fertile...otherwise we get hard and crusty... |
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| November 05, 2007 |
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| What a great blessing... God is so good |
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| December 15, 2007 |
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| Amen! |
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| January 15, 2008 |
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| Thanks Brenda. Raising an autistic child is very challenging. The rewards are so much different than other children. Ryan is a very good boy and tries really hard to please. When we do things just the two of us he tries to be well behaved. One of our favorite things to do is go to the men's breakfasts at church. He looks forward to that time when it is just the two of us. So do I. |
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| May 11, 2008 |
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| You are so right! Who is to say that child has no future or purpose? What a tremendous testimony, and what a wonderful blessing he is to you and your family. The blessings are from the Lord that makes one rich and He adds no sorrow with it. Proverbs 10:22 you are rich in love! |
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| May 11, 2008 |
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| Thanks Todd. My wife and I often wonder who decided what "normal" was anyway?!?! |
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| May 11, 2008 |
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| Yes indeed! What's normal? |
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| May 11, 2008 |
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| I have a friend that works the as the Cheif Operator for the public transportation in our area. He works with a lot of handicapped and special needs people. He made a comment to me, that I thought was very interesting. He said, "Wouldn't that be something when we get to heaven and see that everybody is that way and we were the ones with the handicaps?" My son Cameron who is autistic is everything I wish I could be. He is happy, he is funny, he makes friends easily, he is loved by all, never talks bad about any one, well I take that back to my wife he says occasionaly when she gets on to him, "Miss Anna ugly", but he doesn't gossip or lie, and of all my 5 children he really is the most predictable and easiest to manage. He's my sweet boy and love him so much! Just like I know you love your Ryan! |
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| May 11, 2008 |
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| Wow Voice! You know you got a good post when it is still circulating over a year later! |
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| May 11, 2008 |
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ohhhhhhhh it's Mother's Day and I'm sitting here crying over this one! You see, I have a Ryan too. I lost a child after our first child, was very depressed....our Ryan was born exactly one year and one week after our loss.....God blessed us. People, though, kept talking about our loss.....I told them if I had not lost that child, there would be no Ryan....God means everything for our good. Our Ryan has been a blessing. Now I must say that everytime I look at our Ryan, I will be thinking of your Ryan who is a blessing. This is just such a beautiful thing you wrote....I felt I was actually there, and I was cheering him on with a thumbs up.....that is a thing between my sons and me also :) |
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| May 11, 2008 |
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| Hey Voice, i can totally relate to this. When i was 5 months pregnant with our son Jacob(the rather hyper one!), i had to go to the University of Maryland Med Center for a level 2 sonogram because i got pregant while taking a medication that can cause very serious cranial problems. The medication is called Depakoate. Well long story short, i knew something was wrong when the technician said she needed the head doctor to come to our room. i asked her what was wrong, and she said she couldnt say anything until the doctor viewed the pictures. So naturally fear set in. He came in and she left and he started performing the sonogram, and i asked him if anything was wrong. He said(I'll never forget it), "Well you have asked me a very blunt question, so i am going to give you a very blunt answer, Yes." My heart about dropped. Jacob had 2 cysts on his brain, his celebellum was underdeveloped, and he had fluid in his intestines. The doctor went on to tell us that these were "markers" for 3 things. 1) Cystic Fibrosis 2). Downs Syndrome and the worst 3). a trisome 18 or 21 problem, and that would be fatal. I laid there on the table so afraid with all these thoughts going thru my head and i heard those awful words come out of his mouth" If you would like to terminate, we can arrange that here." I will never forget this as long as i live, Patrick stood straight up and he said "DOC THAT WILL NOT BE AN OPTION!" I knew from that moment on that everything would be alright. We left there and on the way home i called Patricks aunt in Kentucky and she said " Dont you worry about a thing, i am going to hang up and i will have all the prayer warriors on this." The following week i went in for an amniosentesis, and a week later went back for another sonogram and the tech said "Who did your first sonogram?" When i told her it was "the" head doctor she was surprised. I asked if she could tell me what was wrong and she said " Nothing. There are no cysts in his brain, his cerebellum is perfect, and his intestines dont have any fluid." PRAISE THE LORD!!!!!!!!!!!!! She said she couldnt explain this, i said "I can!" The rest of my pregnancy went on and i delivered Jake and he had to be transported back to UM the morning he was born. He couldnt regulate his body temp, his heart rate was unstable and his breathing. We brought him home a couple days later. It makes me wonder how many people have heard the news that a baby isnt "normal", and they terminate their pregnancys. I knew that God had given me this baby and i was keeping him no matter what! Jake does march to his own beat. He is a little different from my other 3. In fact for a while i thought he might be Autistic, but he really doesnt share all of the symtoms. He loves the Lord. He is a very special boy! Isnt it neat that both of these boys that the enemy tried to take out before they were even born sit right near each other in church!!!! Your Ryan and my Jake! God bless you Voice! See ya in church! |
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| May 11, 2008 |
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Amy, your story made me cry and it also made me angry. First, TGBTG!! for all that He does. We can't even fathom the beginning of His glory. We see these kids and think they are nice, but He sees them and thinks they are perfect. The part that makes me angry is that the first place these professionals took you (and us) is to an abortion. There is no plan to "tackle this thing" or "beat it". It is all about "if you want to terminate". Praise God that you and Patrick had a strong faith and, like us, stood strong immediately (knowing the two of you, I would have expected nothing less).
Princess, your story warmed my heart. I know that God's plans are the best plans. We seldom really understand them. Like John paving the way for Jesus, you had a child pave the way for Ryan. It will all be clear to us someday.
Todd, When it all comes clear to us, we will see and understand at that time. Sounds like you have a wonderful son in Cameron. Yes, they are different, but they are wonderful kids with their own dreams, desires, and ability to love.
Sue, I know you really liked this story. I guess others do as well. Thanks for your encouragement.
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| August 19, 2008 |
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| What a wonderful testimony to the goodness of our God and the effectiveness of prayer. My heart is touched by the story of your dear son. |
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| October 27, 2008 |
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| Oh, wow. I am blubbering like a little baby. This story is sooo amazing! And it's amazing because God was in the center and He had you all in His Hands and you were obedient to His calling. PBTG that there are people in the world like you and Sword who encourage the rest of us to rest in the Lord and follow his teachings. :) |
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| October 28, 2008 |
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Thanks Coreena.
Amanda, walking with God is not always easy. Even today we have our days when our walk with Ryan is so challenging we are ready to give up. Still, of one thing we are confident...God has a purpose for each and every one of us - every autistic child included. Thanks for your kind words. |
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| October 13, 2009 |
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[star!] | Beautiful story.. a touch from GOD! |
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