Umbrella?That won't do... it's been a hurricane here! Ok..don't worry- not with Faith, she is doing good. It's us that's been a mess! The past few days have been the craziest days I think we've had all year; Jen went to the hospital (and will need her gallbladder out asap), BOTH dogs got sick and had multiple midnight trips to the ER vet, we went back to work for the school year (teaching)....and all the while Faith was moved up to the floor, which has meant that one of us has had to be there at all times. AHHHHH!!!! Ok..I think we can finally breathe (but we night need a few puffs from Faith's ventillator. The good news is Faith is stable (she might be the most stable member of our family right now)! She was moved out of the PICU and onto the regular floor. She is in a room all by herself, with a nurse to patient ratio of 1:4 which means we are taking turns spending the night at the hospital. Having Faith in the hospital for 6 months was grueling...but we were not spending the night every night so at least we got our sleep- this has been challenging to say the least! What we need for Faith to come home is more nurses. There is a little boy in the room next to Faith with a trach and on a vent. He has been there since has was born and he too is waiting for 24/7 home care nursing. He is 1 1/2 years old. This is why they have been using the "m" word (months) instead of weeks when it comes to Faith being discharged. We are doing everything we can to prevent that- we are putting adds in papers, hanging up flyers, etc.- Aanything for us to get Faith the care she needs. So that is our big prayer request. Faith is holding up her end of the deal- she is stable. Now we just need to hold up ours.
Please catch some z's for us this week!
Brian and Jen :)